How do you holiday?

USA Today says that every country in the European Union has at least four weeks of paid vacation time per year, by law. FOUR WEEKS!Here in the land of the free, the greatest country on earth, we get zero guaranteed paid vacation time. Absolutely none. When the retina specialist told me that I was going blind sooner rather than later, he also told me to "go out and travel! Make a list and see what you can while you can! Do it now. Don't let anything stop you. Your time to see the sights you want to see is very limited. Enjoy it while you can."I laughed and asked him if he was going to fund my travels. I know he was only trying to help, but for a person in my financial condition, meaning a person who lives paycheck to paycheck without much buffer in between, he was only adding insult to injury. I can't afford to go home, to Tennessee, to see family and friends. I can't afford to go to a cabin for a weekend without sharing the cost with 6 other people. How am I supposed to travel and see things before I lose what's left of my sight? HOW?My job is perfect for traveling. I can do it from anywhere as long as I can connect to the internet. Easy enough to manage in this day and age. The wife's is a different story. She's chained to her desk Monday - Friday. No telecommute opportunities for her. Oh, she has ample vacation time available to her, but trying to get approved to take any of it is a fucking joke. And if she could get the time off approved, where in the fuck could we go with our limited budget and car that needs brakes and tires and a tune up first, when we can't even afford to get the brakes, and tires, and the tune up? At this point, I'd take a nice meandering drive through Amish country with a stop off somewhere for lunch, and I'd consider that a god damned luxurious treat. Meanwhile I watch all my friends, year after year post travel pictures on facebook, and I wonder how did they afford that with children to care for? How did they get time off work to go to the beach? I don't understand how we can't make that happen, while so many others can. Sure, they get tax refunds each April, while we scrape together what we can to pay in what we owe yet. I want to travel. I want to see those places I haven't seen in years. I want to see the places I've yet to see. It's been a few years since the last time I was able to take a vacation, and that was with a family group, for just a weekend at a cabin an hour and a half away.
Sometimes I want to scream, "I'M GOING BLIND, GOD DAMMIT! TAKE ME TO THE FUCKING BEACH! I WANT TO SEE THE OCEAN JUST ONE MORE TIME!"or, "PLEASE, just let me see the fucking Rocky Mountains for 1 day, for fuck's sake! Just ONE DAY!"Is it that so hard? My sight is vanishing, and along with it are all my chances to see things like the slopes in Denver, or the northern lights, or an elk...But who would I scream at? It's no one's responsibility to make sure I get to go places and see things, but my own. No one else is responsible for that. It's my own problem that I didn't end up wealthy, well educated, and ready to take on the world. It's my luck of the draw that I got all the bad genes and get to lose my sight. And it's my luck of the draw that the only person I'd want to travel with is tied to a desk at a job that won't allow her to use her vacation days. And it's my luck of the draw that our combined income barely keeps our heads afloat as it is, much less trying to afford to travel anywhere. No wonder Americans die young. We're stuck at our desks for 8+ hours a day, sitting and staring at an LED screen, then we're sold garbage that's labeled as food, and then we're paid a fraction of what we're worth, and we never get to relax and unwind,and when we do, we're breathing in toxic, polluted air. If I was a religious person, maybe I'd pray about it. But I'm not, so that delusion of hope through prayer is absent. So now what? Nothing, I guess, except come here and write about it. 

"I said Venice, and you heard Vegas. Now I say either way, baby, let's go..."

The Plan

It's been over three years since that doctor placed his hand on my back and said, "You have maybe 5-10 years left with your sight. Travel. See what you can see now. Don't wait. And don't let anything stop you."
In that time I have come to accept that what he said is true, and that my time left for seeing the world around me is greatly shortened. I've found a lot of others who have this retinitis pigmentosa, or RP as we call it, and have formed a bit of a camaraderie with them. We are all navigating this path of vision loss and ensuing blindness together. Some of them are further down the path than I am, others have not yet made it to where I stand. Collectively, we draw on the experience, strength, and hope of each other.
In talking with, chatting with, facebooking with these good people, I've found that we are quite an interesting and diverse group. From housewives to physicians, from gardeners to engineers, and from artists to I.T. professionals...we span every demographic imaginable. And it occurred to me, these people have stories.
We do.
We have stories of how we came to accept or in some cases detest our vision loss, of how we managed to cope in a world that does not understand vision loss, how we reinvented ourselves to accommodate our vision loss, and how we found each other through modern technology and social media.
And then it occurred to me that someone needs to tell these stories.

photo courtesy By Vítězslav Válka (http://www.pixmac.com) [CC-BY-SA-3.0-cz (http://creativecommons.org/licenses/by-sa/3.0/cz/deed.en)], via Wikimedia Commons

So here's my plan.
Over the next year, I'd like to gather enough funds to be able to take a cross-country journey via RV with The Wifester and Sally Sue. I can kill two birds with one stone, so to speak: I can see this country like I've always dreamed of, and I can meet some of these wonderfully interesting people who share this experience of RP. The Wifester can take photos of our journey, because if you've spent much time around this blog you already know that she is quite the brilliant photographer. I can live blog my adventure, so you can follow me as I have this experience. And in the end, I'll produce a book of my journey and of the stories of the folks that I met along the way. Plus, I get the opportunity to paint landscapes in the desert like I've dreamed of for years and years. And The Wifester and I get to see this great country of ours together.

That's the plan, anyways. I'm still in the very early planning stages, but I think I have to do this. I need the journey, and these people's stories need to be told. 

*If you are one of my fellow RP'ers, and you would like a visit from The Wifester, Sally Sue, and I, please contact me either via this blog or via facebook, and we'll talk about the plan.