It was strange looking at those photos of my brain, and seeing that little, oblong blob of tissue sitting where nothing but brain should be sitting. It was a little bit unnerving, but they assured me that this tumor is not cancer, and most likely will be very slow growing.
I have to go back in three months, or sooner if I start having any symptoms. Symptoms to watch for: seizures, headaches, dizziness, vision loss, ear ringing. Great! I already have every single one of those symptoms, but they tell me they are not from this tumor. How can I be so sure of that? Would you be so sure? I wonder if I need to get a second opinion. I think I should. I am not really stressing over it, but I kind of am.
Does that even make sense? I mean, I know, from all that I've read and studied, I know that this tumor is probably nothing to be too concerned about. Most of the time they are benign and very often they never cause any serious problems. But I also know that they can become cancerous, and even when they remain benign, they can have severe, sometimes life threatening effects. How can we be so sure that mine is a friendly tumor? Can you ever be so sure?
I want it out of me. But I don't want to subject my brain to the trauma of surgery, and radiation/chemo scares me.
When I got my retinitis pigmentosa diagnosis, and found out I would lose my sight I thought this, THIS is the challenge of my life.
I was wrong.